Zachary Saurini was born with the rare Oculo-Ectodermal Syndrome & Jaffe Campanacci
Syndrome. These syndromes have caused Zachary to have tumors on his
long bones, length discrepancies on both arms & legs, along with the bones being
very brittle. Zachary has undergone many surgeries to correct this, with the most recent
one at Childrens Hospital Boston. Zachary faces more surgeries in the
future.Your attendance at Zach’s event will be donated to the Saurini Family to
specifically help them pay for travel, living and medical expenses.
For Info email: thesaurinis@yahoo.com